Jakarta:Vihiga County Health officials in Vihiga County are advocating for increased community support and inclusion for individuals living with chronic illnesses and disabilities, along with their caregivers, to enhance their quality of life.
According to Kenya News Agency, this call to action was made during World Hospice and Palliative Care Day celebrations at Vihiga County Teaching and Referral Hospital. The event brought together health workers, caregivers, and parents of children with cerebral palsy to raise awareness about the significance of palliative care.
Nurse Risper Lusiji from the VTRH Oncology Department highlighted the event’s focus on recognizing the care provided to cancer patients and others requiring palliative treatment. Lusiji emphasized that palliative care is not limited to cancer and extends to individuals with various chronic conditions and disabilities, including cerebral palsy. This year’s theme, ‘Pain Management An Essential Part of Palliative Care,’ underscores the importance of addressing the comprehensive needs of patients, including their physical, psychological, social, and spiritual well-being.
During the gathering, parents and caregivers shared the challenges they face, such as financial constraints, stigma, limited family support, and healthcare access difficulties. Some parents mentioned issues with the Social Health Authority (SHA), noting challenges in accessing necessary services and affording annual contributions. Caregivers also expressed concerns about societal stigma, which has led some families to withdraw from social activities, exacerbating their isolation and emotional distress.
Additionally, the demanding nature of caregiving, which often requires constant attention, has forced some parents to leave their jobs, compounding their financial struggles. SHA officials present at the event advised parents on the healthcare benefits available and encouraged them to register their children to alleviate treatment costs.
Personal stories were shared, such as Jackline Oriesa’s experience caring for her child, who began walking at age five despite severe physical challenges. Despite facing community discrimination, Oriesa remains dedicated to her child’s care. Another caregiver, Eunice Otiende, recounted her son’s struggles with meningitis and subsequent disabilities, yet noted his progress in a special school in Kisumu.
Lusiji called for collaboration between government departments, community leaders, families, and organizations to bolster support for patients and caregivers. She stressed that palliative care should encompass compassion, dignity, and social inclusion, ensuring emotional support for patients and their families.
